The family of a five-year-old living with Becker muscular dystrophy has raised in excess of £15,000 to help in the search for a cure.
Harrison Loosen was diagnosed with the condition in November 2015 after a weakness in his legs and pelvis first became apparent.
A little over 12 months on, parents Julie and Phil have already donated thousands to Muscular Dystrophy UK, after organising a series of fundraisers as part of their Hope4Harrison campaign.
Mr Loosen told the Basingstoke Gazette that their efforts had been hugely successful.
“We are really happy with how much we have managed to raise throughout the year,” he said.
“The generosity of strangers as well as people we know has just been incredible.”
Dance-a-thons, static bike rides and a six-a-side football tournament are just some of the events which helped add to the family’s formidable total.
And plans are already underway for a similarly busy diary in 2017. Harrison’s mum has announced she will be taking part in a skydive at some point in the next 12 months and his grandmother’s workplace have named Help4Harrison their “charity of the year.”
“Harrison knows that he can’t do some of the things people who are fundraising for him can,” said Mr Loosen.
“But he still has his involvement being at all the events and handing out medals.”
Becker muscular dystrophy has similar symptoms to Duchenne, although it is probably not as well-known – despite the fact that sufferers typically deteriorate more quickly.
The severity of the disease often depends on when the condition first manifests. If it sets in aged seven or eight, it is likely to cause more cardiovascular problems than in someone whose health begins to decline around the age of 12.
At EnViva Paediatric Care, our experienced staff can provide complex nurse-managed homecare for babies, children and young people with a range of disabling conditions, including muscular dystrophy. For more information about the services we provide, please contact us today.