Hannah Harding had her son Reggie nine weeks early after he had a stroke before birth due to a placental abruption.
Ms. Harding gave birth to her first child, Reggie Harding-Winter, in February 2015.
The mother suffered a placental abruption, which is a serious condition in which the placenta starts to separate from the uterus before birth. The placental abruption cut off the supply of oxygen to her son’s brain, essentially causing a stroke.
This led to her having a C-section and delivering her son nine weeks early. At eight months old her son began to have seizures.
After scans, doctors were able to diagnose Reggie with a lifelong condition called hemiplegia, a type of cerebral palsy; this is caused by damage to the brain and nerves before birth.
It affects a person’s abilities to move their limbs on one side of their body and may cause other, less obvious effects such as epilepsy, learning difficulties, anxiety or challenging behaviour.
Reggie’s parents want to send their determined son for intense physiotherapy to make him stronger before he starts school next year. At present, his seizures are completely under control and he currently wears a splint on his right foot to help him walk.
An optimistic option for Reggie would be to complete a course of constraint-induced movement therapy (CIMT), to help him build up the strength in his right side.
Ms. Harding: “We will then spend three hours each day for four weeks with the specialist paediatric physiotherapists, carrying out intense physiotherapy and play on his right side.”
Reggie has had his assessment and meets all of the necessary criteria, but CIMT is not funded by the NHS.
So his parents have set up a JustGiving fundraising page to raise £12,000 to cover the cost of the programme, travel, and accommodation.
She added: “The expected outcome is huge and will, hopefully, build Reggie’s confidence in his right side, lower his sensitivity and help remap his brain and build muscle memory.
“I would love to think we might be able to reach our goal by then, but I am well aware that this is extremely ambitious.
“Reggie will be starting school next year, and the thought of him having specialist cutlery, just to help him eat or Velcro clothes so he can dress himself, is a hard thing to process.
“The task ahead is massively daunting and is going to be extremely tough on Reggie.
“But it will be worth it if it is going to significantly improve his quality of life.”
Enviva Paediatric Care provides nurse-managed homecare for babies, children, and young people. To find out more about our services, contact us today.