A man whose two young sons have both been diagnosed with Duchenne Muscular Dystrophy is gearing up for a charity cycling challenge.
Richard Rowlands, from Havant, in Hampshire, will be joined by three friends for next month’s RideLondon event.
Richard’s sons Michael, aged ten, and Bradley, seven, were found to have the muscle-wasting condition at a young age and their mum Jo is now a full-time carer to the two boys.
The family’s experience has inspired the father to tackle the 100 mile course in an effort to raise both funds and awareness for muscular dystrophy research.
“When the boys were both diagnosed with Duchenne, Jo and I were completely devastated,” said Richard.
“We felt isolated as we had never heard of the condition before. Discovering [the charity] Muscular Dystrophy UK has helped us enormously.
“Michael was born very prematurely at 27 weeks and has always had to fight since he was born. At first we thought his development delays were due to being premature; he had trouble walking, and didn’t actually start walking until much later. He is now ten and a full-time wheelchair user. Bradley is seven and is still just about walking.
“Although Michael in particular sometimes gets frustrated when he can’t do something, they are both such happy and smiley little boys. The boys are really close and understand that have a condition–they help each other out when the other is struggling.”
The RideLondon event will be taking place on July 30th and 31st. Richard will be joined on the road by Brian Bevis, Alan Bailey and Simon Fitzpatrick, who have previously accompanied him on a number of other charity bike rides.
EnViva Paediatric Care, our experienced staff can provide complex nurse-managed homecare for babies, children and young people with conditions including muscular dystrophy. For more information about the services we provide, please contact us today.