Parents frustrated by ongoing debate about cerebral palsy physio

The mother and father of a schoolboy with cerebral palsy have expressed their dismay following an apparent NHS u-turn over their son’s treatment.

Ben Baddeley, aged 12, had been due to see a health service specialist for the first time in nearly three years.

But his appointment was cancelled at the eleventh hour, after officials at the North Staffordshire Clinical Commissioning Group (CCG) told his parents that they would need to review the youngster’s case.

It is a fresh blow for Ben’s family, who previously had to go private so that he could undergo a selective dorsal rhizotomy (SDR).

Following the procedure, Amy and Gary had been fighting a battle to get the physiotherapy that follows the operation available on the NHS.

Since having the SDR surgery, experts have said that Ben has made “remarkable progress” and can now walk independently for decent distances.

Professor Michael Vloeberghs, from the Nottingham University Hospitals, said: “He is about at a growth spurt and may require tuning of his exercise programme in accordance with his changing needs.

“In essence, Benjamin, his father and I are very pleased with the progress he has made but it is my opinion he will need further input from physiotherapy to maximise his potential and avoid long term complications such as problems with hips, knees and ankles.”

North Staffordshire CCG had pledged to look again at funding the youngster’s treatment.

Cheryl Hardisty, the director of clinical commissioning, said: “Our priority is to ensure that Ben, and every other child, receives the NHS care and treatment that is clinically appropriate for their needs.”

At EnViva Paediatric Care, our experienced staff can provide complex nurse-managed homecare for babies, children and young people with a range of disabling conditions including cerebral palsy. For more information about the services we provide, please contact us today.

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