Nursery creates a fundraising day for boy with Duchenne muscular dystrophy

Ben Clarke, aged five has a muscle-wasting condition, Duchenne muscular dystrophy, which means he will gradually lose the ability to walk, eat and breathe.

As a result of the condition, in the near future, he will need a wheelchair to aid his mobility and his family home will need to be adapted to suit his needs.

The young boy attended the same nursery for three years before starting primary school.

After hearing about his condition the nursery staff wanted to help Ben by hosting a fun day to help raise money for the family.

Ben’s dad, Alex Clarke, said the family wanted to keep Ben’s life as normal as possible but had to find tens of thousands of pounds to adapt their home and pay for specialist equipment.

Mr Clarke said: “There are big items Ben will require sooner or later, like an electric wheelchair which will be his only form of independence.

“We will have to adapt our house to accommodate Ben. We will change his playroom to living quarters downstairs and also have ramps and a wet room with a hoist.

“We will have to complete this within four years. A disabled toilet alone could cost up to £10,000 and we also need a specialist bed, flooring and to make sure the house is accessible.”

The fundraising day consisted of a variety of fun activities including, face painting, games and a visit by an animal roadshow company who brought along many different reptiles.

Mr Clarke said: “When the nursery heard about his condition they came up with the idea of doing a fundraising event.

“There was so much hard work put into it and amazing support from local businesses. Ben had an absolutely amazing day. It was a roaring success and thanks to every single member of staff for the hard work they put in.”

Gemma Samuel, who organised the event at the nursery, described the fun day as “absolutely amazing”, adding: “We didn’t expect so many people to turn up.”

The successful fun day managed to raise £1,520.

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