Nine-year-old with rare type of muscular dystrophy raises £147k for charity

A nine-year-old girl living with an ultra-rate type of muscular dystrophy has managed to raise hundreds of thousands of pounds for a leading charity.

Abbi Bennet, Birmingham, was first diagnosed with Ullrich Congenital Muscular Dystrophy at age two – a rare muscle-wasting condition which affects only one in a million young people.

There is currently no known cure for the disease, but brave Abbi has been investing all of her energy into fundraising for Muscular Dystrophy UK – a charity which conducts far-reaching research into potential future treatments.

Alongside her parents Sarah and Gary, the nine-year-old has been speaking out about her condition on stage at various charity events, and urging members of the public to donate.

So far, Abbi has managed to raise an astonishing £147,000 for the charity.

Commenting on her efforts, she said: “I’m really grateful for all the people who give money to charity.

“We raise money for all the little boys and girls and adults who have muscular dystrophy to help them get better, and better, and better each time”.

According to reports, young Abbi is currently preparing to accept a prestigious regional award at the Pride of Birmingham Awards 2017, which will take place on Thursday 20 April.

At EnViva Paediatric Care, our experienced staff can provide complex nurse-managed homecare for babies, children and young people with a range of disabling conditions, including muscular dystrophy. For more information about the services we provide, please contact us today.