A nine-year-old boy with Duchenne muscular dystrophy (DMD) has uploaded a heartfelt video calling for a cure for the disease.
Carson Jones, of Rhyl, Wales, shared the video as part of World Duchenne Awareness Day, to help raise awareness of the fact that one in every 3,500 new-born boys is affected by the rare, muscle-wasting disease – for which there is currently no treatment or cure.
Carson’s father, David, encouraged his son to participate in the event, which took the internet by storm on Wednesday 7 September.
“He is the best son I could ever wish for and his ability to smile through the devastation that Duchenne is causing is amazing,” said Jason Jones.
“Carson knows that there is currently no cure or treatment for Duchenne and the importance of raising awareness.
“To be able to stop the progression of the disease would mean everything. If a cure was found, it would mean that Carson’s quality of life would be better.
“We try to cram a lifetime of memories into a short span which is very difficult.
“Carson only knows what is age-appropriate about Duchenne, it is considered a rare disease so it is not as known to everyone.”
EnViva Paediatric Care, our experienced staff can provide complex nurse-managed homecare for babies, children and young people with a range of disabling conditions including muscular dystrophy. For more information about the services we provide, please contact us today.