The mother of a young boy with rare Becker muscular dystrophy is gearing up to tackle a charity skydive in a bid to raise awareness of the condition.
Natasha MacNeil, North Somerset, is hoping to raise funds for leading charity Muscular Dystrophy UK by parachuting out of a plane this August.
The brave fundraiser has been inspired to take on the challenge after being inspired by her son Keiran’s ongoing battle with Becker muscular dystrophy – a debilitating condition characterised by the progressive weakening of muscles in the legs and pelvis.
Keiran, who is just six-years-old, was very recently diagnosed with the condition – which currently has no cure.
But mother Natasha is hoping that her charity fundraising will help Muscular Dystrophy UK to continue to succeed in their crucial research into future treatments.
“Keiran is a happy boy with a get-up-and-go attitude. He endures a lot of pain every day, but he is an inspiration to myself and others,” she says.
“I hope we can help other families to improve their condition and make their lives as comfortable as possible.”
The latest research estimates that as many as 70,000 people across the UK are affected by Muscular Dystrophy and related conditions.
At EnViva Paediatric Care, our experienced staff can provide complex nurse-managed homecare for babies, children and young people with a range of disabling conditions including muscular dystrophy. For more information about the services we provide, please contact us today.