Hampshire family’s remarkable fundraising push

A family has raised an incredible £200,000 towards the Duchenne Research Breakthrough Fund in less than three years.

Sue and Tom Barnley, from Hampshire, launched the Help4Harry campaign in August 2013, with the proceeds going towards more effective treatments for the muscle-wasting condition.

They were galvanised into action after their son Harry was diagnosed with the disease at the age of five. By his tenth birthday he is likely to need a wheelchair to get around and the current lack of a cure means that he is unlikely to see his 30th birthday.

Friends and family members have rallied around to support his parents’ efforts, with endeavours including treks to Kilimanjaro, skydives, cycle rides, football tournaments and quiz nights.

In a statement, the Barnley family said they could not believe that they had reached the £200,000 milestone.

“It’s mind blowing that we have managed to raise this money in such a short space of time, the support we receive from all our family and friends just continues to leave us speechless.

“Thankfully it doesn’t look like it’s easing up either, we have a lot of varied challenges taking place throughout 2016 – ultra marathons, swims, runs, triathlons and 80s music nights, to name a few.

“This money means that vital research can take place with the hope that one day soon there will be an end to this dreadful disease.”

The Help4Harry fund has bolstered a number of important research projects, including gene-based therapy and investigations into increasing levels of the protein utrophin.

Muscular Dystrophy UK paid tribute to the family’s tireless endeavours.

EnViva Paediatric Care, our experienced staff can provide complex nurse-managed homecare for babies, children and young people with conditions including muscular dystrophy. For more information about the services we provide, please contact us today.