The family of a young boy who was recently diagnosed with cerebral palsy are on a fundraising mission to help their son enjoy the holiday of a lifetime.
Skiing enthusiasts Andrew and Emma Maxwell are hoping to raise enough money to buy a specially-adapted ski so that their five-year-old son Henry can accompany them on their next adventure.
Henry was diagnosed with quadriplegia cerebral palsy in 2013, a serious form of the condition which has affected all four of his limbs and also affected his ability to eat and drink unaided.
The youngster, who lives in East Grinstead, Surrey, relies on “one to one care all of the time,” according to reports.
Mrs Maxwell explains: “His brain doesn’t communicate to his hands so he can’t do what he wants to do.
“He can only say a handful of words at the moment. Cerebral palsy affects everyone differently.
“It is very difficult and I know Henry is frustrated. It’s quite severe for Henry as all four of his limbs are suffering from it.”
Previously, young Henry has enjoyed skiing with his family at the Southern Ski Club for the Disabled (SSCD) near Surrey, where Henry had a fantastic time.
Mrs Maxwell says that she had “never seen him so happy.”
The family are now hoping to raise enough money for specialist equipment which will enable Henry to ski with them in the great outdoors in Austria.
The specially-adapted ski they are hoping to get their hands on will allow Henry to sit at the front while one of his parents pilots it.
At EnViva Paediatric Care, our experienced staff can provide complex nurse-managed homecare for babies, children and young people with a range of disabling conditions, including muscular dystrophy. For more information about the services we provide, please contact us today.