Friends, family-members and fundraisers hope to raise money for a young boy with muscular dystrophy by climbing the highest peak in South Wales this spring.
Mikey Griffiths, Newport, was diagnosed with the muscle-wasting condition when he was just six-weeks-old.
The now 12-year-old’s condition is slowly deteriorating, and the youngster is currently using an electric wheelchair to get around.
Parents Barry and Samantha Griffiths have been trying to raise money to adapt their family home to suit Mikey’s future needs – and to fund a family holiday to Disney World while Mikey is still able to travel.
Mum Samantha said: “He has deteriorated quite a lot recently. We went to Great Ormond Street Hospital and the condition is now starting to affect his heart”.
Following an ongoing fundraising campaign, which has spanned numerous bucket collections and online promotions, fundraisers from the local community will be climbing Pen-y-Fan – South Wales’ highest peak – next month in order to raise money for Mikey.
Some fundraisers have even said that they hope to climb the peak ten times over a 24-hour period.
Commenting on the response to the family’s campaigns, Samantha said: “It’s amazing really, we have never met people who have cared as much as [these fundraisers] have.
“It’s been lovely to see how much they care about Michael and it’s nice to see there are people out there who want to help,” she added.
At EnViva Paediatric Care, our experienced staff can provide complex nurse-managed homecare for babies, children and young people with a range of disabling conditions, including muscular dystrophy. For more information about the services we provide, please contact us today.