Family’s frustration over cerebral palsy treatment

A young boy whose cerebral palsy surgery was not available on the NHS has once again written to the Prime Minister.

Ben Baddeley, aged 11, had to go private to have the life-changing procedure and his family have subsequently had to find money to afford the intensive course of physiotherapy which follows the procedure.

Ben had already written to David Cameron asking for the reasons why the treatment was not available on the NHS and having felt “let down” by the Prime Minister’s response, he has now penned a second message.

“I thought [the health service] was there to help poorly people like me. I am confused because you are our Prime Minister, I thought that meant you are in charge of all the big things in England,” the schoolboy wrote.

“I’m worried my treatment will have to stop as my mum and dad are struggling to fundraise. I really hope you can answer my questions this time.”

Ben’s parents are frustrated that Mr Cameron had not appeared to have checked the specific circumstances before sending a reply to their son.

A funding request to NHS North Staffordshire has previously been refused a number of times.

Mum Amy said: “Mr Cameron would know that if he had bothered to check.”

At EnViva Paediatric Care, our experienced staff can provide complex nurse-managed homecare for babies, children and young people with conditions including cerebral palsy. For more information about the services we provide, please contact us