Family of boy with cerebral palsy plan “silent protest”

The family of a schoolboy with cerebral palsy were disappointed after a crucial physiotherapy appointment was cancelled at the eleventh hour.

Ben Baddeley, aged 12, was due to meet a specialist last week, but the session was called off shortly beforehand.

Parents Amy and Gary said that they intended to stage a “peaceful protest” to make their feelings known about the way that North Staffs Clinical Commissioning Group (CCG) had handled the situation.

A public appeal had previously helped raise £20,000 for the youngster to undergo a selective dorsal rhitzotomy – an operation which was not available on the NHS.

Following on from the procedure, which was carried out in Nottingham in 2014, Ben has needed regular sessions of intensive physiotherapy.

While his mobility has improved dramatically, this treatment is necessary to ensure that the benefits are sustained.

Once again this has previously been funded by relatives, friends and supporters, but with the fund finally running dry, the family had hoped that support would be made available via the health service.

Mrs Baddeley said: “We explained that we could not pay for any further treatment.

“We could not believe it when they said there was no record of any contact.”

A spokesman for the CCG said: “We cannot discuss his case as it would breach patient confidentiality.

“Our priority is to ensure Ben, and every other child, receives a level of NHS care and treatment that is clinically appropriate for their needs.”

At EnViva Paediatric Care, our experienced staff can provide complex nurse-managed homecare for babies, children and young people with a range of disabling conditions, including cerebral palsy. For more information about the services we provide, please contact us today.