Decision dashes Ben’s hopes of NHS help

A family caught up in a long-running battle to get funding for their son’s physiotherapy have received confirmation that the treatment won’t be available on the NHS.

In a devastating blow for Ben Baddeley and his parents, the North Staffordshire Clinical Commissioning Group (CCG) has said it will be unable to cover the costs of the crucial physio sessions.

The family had already had to privately fund pioneering surgery for the schoolboy, who has cerebral palsy.

Following on from the £20,000 operation, a further £25,000 was raised to finance a programme of follow-up treatment.

With the money now used up, friends and family had hoped that the health service would agree to step in and provide the sessions.

Prof Vloeberghs, of Nottingham University Hospital, which carried out the procedure, had argued that Ben had made significant progress, but continuing physiotherapy was key if the benefits of the surgery were to be sustained.

Mum Amy said: “Ben is currently suffering with his hips and he really needs that to be treated before further damage is done.

“His account is currently empty. We are waiting on a donation via cheque to clear so we can pay Ben’s therapist to treat his hips.”

North Staffs CCG said: “We cannot discuss his case as it would breach patient confidentiality. Our priority is to ensure Ben and every other child, receives a level of NHS care and treatment that is clinically appropriate for their needs.”

At EnViva Paediatric Care, our experienced staff can provide complex nurse-managed homecare for babies, children and young people with a range of disabling conditions, including cerebral palsy. For more information about the services we provide, please contact us today.

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