Christmas lights display to raise money for young girl with Rett syndrome

A Christmas lights display will raise money for an 11-year-old girl who suffers from ultra-rare Rett syndrome.

Frankie Ross, Buckinghamshire, was first diagnosed with the degenerative condition – which affects just one in every 10,000 girls – when she was three.

Speaking of Frankie’s condition, mother Rita Ross said: “It’s very difficult on a day to day basis so every bit of help that we get makes such a difference. All you want is for your child to be healthy and have the best life possible”.

The condition causes Frankie – and other young girls like her – to slowly lose basic skills, such as the ability to walk, talk and use her hands, as she grows older.

But an annual light display in Frankie’s local village of Pitstone hopes to raise money for the young girl this Christmas – which Ms Ross hopes will fund a hoist for her daughter.

She said: “The support is overwhelming to see the kindness of people locally. It makes such a difference to have fantastic support from people around you.

“To have this at Christmas makes it all the more special as it’s Frankie’s favourite time of year”.

At EnViva Paediatric Care, our experienced staff can provide complex nurse-managed homecare for babies, children and young people with a range of disabling conditions including Rett syndrome. For more information about the services we provide, please contact us today.