The family and friends of a young boy with Duchenne muscular dystrophy are taking part in a charity run to raise awareness of the muscle-wasting condition.
Archie Armsden, Leicestershire, was diagnosed with the condition at the age of one. Doctors told his family that symptoms of muscular dystrophy could appear at any time from age two onwards.
But at age three-and-a-half, Archie is still not showing any significant symptoms – and his family are very worried.
Archie’s mother, Samantha Hurst, said: “It could start at any point. We are racing against the clock to find a cure before it’s too late”.
She said that she hopes the charity run, which will give people the opportunity to run either five or ten kilometres to raise money for Muscular Dystrophy UK, will be a success.
“The whole reason for doing this is to find a cure,” she said.
“Even if the training takes months, even if I’m the slowest on the track, I want to do this because it’s something Archie will never be able to do.
“We all have the chance to run 5km or 10km – even if we don’t want to. Archie doesn’t have that luxury,” she added.
For Ms Hurst, this is not the first time she has been involved with the charity. Last year, she set up charity fund Archie’s Army – which has so far managed to raise £16,000 for research into the muscle-wasting condition.
At EnViva Paediatric Care, our experienced staff can provide complex nurse-managed homecare for babies, children and young people with a range of disabling conditions including muscular dystrophy. For more information about the services we provide, please contact us today.