UK fundraisers are in the process of organising a charity football match for a four-year boy who has a rare muscle-wasting condition.
Stanley Newman, of Clacton-on-Sea, Essex, suffers from congenital muscular dystrophy – a condition which his family say is slowly weakening his body day-by-day.
Stanley’s parents, Rob and Laura Newman, are hoping to raise enough money to purchase a hydrotherapy pool which they say will make a “large difference” to the youngster’s life.
Father, Rob Newman, said: “I used to take Stanley swimming twice a week as it is an important part of his therapy.
“[But] warm water in a hydrotherapy pool will help Stanley use the little strength he has left on a daily basis, as the water takes up to 70 per cent of his body weight. It would make such a large difference to the health of Stanley and make him a happier little boy”.
Last year, local charity Essex Hands heard Stanley’s story and were inspired to help Rob and Laura to achieve their dream of purchasing a special hydrotherapy spa to set up in their garden.
Marion Knight, founder of Essex Hands, said: “His condition is very close to my heart as my great niece also suffers with a similar disease”.
The charity is currently in the process of organising a charity football match in order to raise money for Stanley’s cause.
At EnViva Paediatric Care, our experienced staff can provide complex nurse-managed homecare for babies, children and young people with a range of disabling conditions including muscular dystrophy. For more information about the services we provide, please contact us today.