Brewery’s bid to help youngster with rare Rett syndrome

A popular brewery has launched a new fundraising initiative in a bid to support one young girl living with ultra-rare Rett syndrome.

Chiltern Brewery, near Aylesbury, has agreed to donate 5p to three-year-old Sophie Edes, the granddaughter of one of their former members of staff, for every pint they sell of their signature Charity Ale.

The initiative comes after the brewery was touched by the youngster and her family’s story and wanted to take part in helping them to raise enough money to purchase specialist equipment which will prove vital in the near future.

Sophie was diagnosed with Rett syndrome fairly recently, when her parents, Mark and Liz Edes, were told that the youngster may never be able to walk unaided, or speak to communicate.

Shortly after the diagnosis, Mark and Liz launched the #SupportSophieEdes charity campaign in a bid to raise enough money to fund potentially life-changing equipment.

The Chiltern Brewery, where the youngster’s grandmother, Sue Edes, worked for a long time up until her recent retirement, also decided to step in to help.

Tom Jenkinson, Head Brewer at the brewery, said: “Sue worked here for many years and she was a keen member of our team – we keep in regular contact with her.

“When we found out that her granddaughter Sophie has Rett Syndrome and needs some life-changing equipment, there was only once choice for our charity beer this year.”

Enviva Paediatric Care provides nurse-managed homecare for babies, children and young people. To find out more about our services, contact us today.

Navigation