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Youngster with muscular dystrophy gets dream trip to Disney World

Youngster with muscular dystrophy gets dream trip to Disney World
Posted on 15 Oct 2018 by EnViva Paediatric

A four-year-old boy living with Duchenne muscular dystrophy had the surprise of a lifetime last week, after a prominent charity informed him he’d be going on a dream trip to Disney World.


Bake this October to fight muscular dystrophy

Bake this October to fight muscular dystrophy
Posted on 9 Oct 2018 by EnViva Paediatric

Bakers are being called upon across the nation this October to help raise vital funds for Muscular Dystrophy UK.


£3,500 fundraising boost for youngster with cerebral palsy

£3,500 fundraising boost for youngster with cerebral palsy
Posted on 8 Oct 2018 by EnViva Paediatric

A young girl living with cerebral palsy has received £3,500 towards potentially life-changing surgery, following a successful charity event organised in her local community.


Marks and Spencer launch ‘easy dressing’ range for children with disabilities

Marks and Spencer launch ‘easy dressing’ range for children with disabilities
Posted on 2 Oct 2018 by EnViva Paediatric

Marks and Spencer have launched a clothing range specifically designed for children with disabilities from new-born to age 16. 


Youngsters help raise money for little sister with cerebral palsy

Youngsters help raise money for little sister with cerebral palsy
Posted on 1 Oct 2018 by EnViva Paediatric

Three UK children are organising a ‘fundraising extravaganza’ in an effort to raise money for their sister, Felicity – an eight-year-old living with epilepsy and cerebral palsy.


Could CRISPR help 70,000 Britons living with muscular dystrophy?

Could CRISPR help 70,000 Britons living with muscular dystrophy?
Posted on 24 Sep 2018 by EnViva Paediatric

Scientists experimenting with an influential new kind of gene-editing technology known as CRISPR are becoming increasingly interested in whether it could prove game-changing for conditions such as muscular dystrophy.


Tech program helps boy with cerebral palsy to walk

Tech program helps boy with cerebral palsy to walk
Posted on 18 Sep 2018 by EnViva Paediatric

A young boy living with cerebral palsy has begun walking thanks to an ‘assistive technologies’ computer program.


Youngster with cerebral palsy ‘walks to school for first time’

Youngster with cerebral palsy ‘walks to school for first time’
Posted on 17 Sep 2018 by EnViva Paediatric

A young girl who has lived with cerebral palsy since birth has walked to school for the first time following a life-changing operation.


Five-year-old pens book about living with cerebral palsy

Five-year-old pens book about living with cerebral palsy
Posted on 10 Sep 2018 by EnViva Paediatric

A youngster living with cerebral palsy has penned a book about her day-to-day life, with the goal of helping other children to better understand the condition.


Banning spinal muscular atrophy drug is the wrong choice

Banning spinal muscular atrophy drug is the wrong choice
Posted on 4 Sep 2018 by EnViva Paediatric

The NHS could be banning a vital drug that would be devastating for around a 1,000 people with a rare disease called spinal muscular atrophy (SMA).


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