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Five-year-old pens book about living with cerebral palsy

Five-year-old pens book about living with cerebral palsy
Posted on 10 Sep 2018 by EnViva Paediatric

A youngster living with cerebral palsy has penned a book about her day-to-day life, with the goal of helping other children to better understand the condition.


Banning spinal muscular atrophy drug is the wrong choice

Banning spinal muscular atrophy drug is the wrong choice
Posted on 4 Sep 2018 by EnViva Paediatric

The NHS could be banning a vital drug that would be devastating for around a 1,000 people with a rare disease called spinal muscular atrophy (SMA).


Gene-editing breakthrough good news for muscular dystrophy research

Gene-editing breakthrough good news for muscular dystrophy research
Posted on 3 Sep 2018 by EnViva Paediatric

A breakthrough in the field of gene-editing could provide hope for hundreds of people living with muscular dystrophy, researchers have said.


Daily glucocorticoid use could increase risk of spinal fractures in boys with DMD, study finds

Daily glucocorticoid use could increase risk of spinal fractures in boys with DMD, study finds
Posted on 28 Aug 2018 by EnViva Paediatric

A two-year study reports that boys with Duchenne muscular dystrophy (DMD) that are on a long-term regime of glucocorticoids (GCs) are more likely to develop spinal fractures, have poorer growth and gain more body fat than those on intermittent use.


Two year old boy youngest ever diagnosis of ‘childhood Alzheimer’s’

Two year old boy youngest ever diagnosis of ‘childhood Alzheimer’s’
Posted on 21 Aug 2018 by EnViva Paediatric

A two-year-old boy is believed to be the youngest person in Britain ever to be diagnosed with a rare brain condition labelled the childhood version of Alzheimer’s.


Young hockey lover with cystic fibrosis calls on children to join charity tournament

Young hockey lover with cystic fibrosis calls on children to join charity tournament
Posted on 14 Aug 2018 by EnViva Paediatric

An 11-year-old girl living with cystic fibrosis is encouraging other children to take part in an upcoming hockey tournament in aid of a prominent charity.


Core training may improve posture and walking ability in children with cerebral palsy

Core training may improve posture and walking ability in children with cerebral palsy
Posted on 13 Aug 2018 by EnViva Paediatric

Research has found that adding core stability exercises to physical therapy improves posture and walking ability in children with hemiplegic cerebral palsy.


Youngster with cerebral palsy training to tackle famous surfing event

Youngster with cerebral palsy training to tackle famous surfing event
Posted on 7 Aug 2018 by EnViva Paediatric

A teenage boy living with cerebral palsy is hoping to travel to California to take part in a world-famous surfing championship this winter.


Award for muscular dystrophy boy’s feline companion

Award for muscular dystrophy boy’s feline companion
Posted on 6 Aug 2018 by EnViva Paediatric

A pet cat that has been a long-term source of friendship for a boy living with Duchenne muscular dystrophy has won an unusual award in recent days.


Study could help scientists to better understand Rett syndrome

Study could help scientists to better understand Rett syndrome
Posted on 31 Jul 2018 by EnViva Paediatric

A new study has paved the way for future research into the complex yet increasingly common condition, Rett syndrome. This week, researchers at Massachusetts General Hospital (MGH) in the US published an article documenting tests performed on mice models of


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