A youngster living with cerebral palsy has penned a book about her day-to-day life, with the goal of helping other children to better understand the condition.
The NHS could be banning a vital drug that would be devastating for around a 1,000 people with a rare disease called spinal muscular atrophy (SMA).
A breakthrough in the field of gene-editing could provide hope for hundreds of people living with muscular dystrophy, researchers have said.
A two-year study reports that boys with Duchenne muscular dystrophy (DMD) that are on a long-term regime of glucocorticoids (GCs) are more likely to develop spinal fractures, have poorer growth and gain more body fat than those on intermittent use.
A two-year-old boy is believed to be the youngest person in Britain ever to be diagnosed with a rare brain condition labelled the childhood version of Alzheimer’s.
An 11-year-old girl living with cystic fibrosis is encouraging other children to take part in an upcoming hockey tournament in aid of a prominent charity.
Research has found that adding core stability exercises to physical therapy improves posture and walking ability in children with hemiplegic cerebral palsy.
A teenage boy living with cerebral palsy is hoping to travel to California to take part in a world-famous surfing championship this winter.
A pet cat that has been a long-term source of friendship for a boy living with Duchenne muscular dystrophy has won an unusual award in recent days.
A new study has paved the way for future research into the complex yet increasingly common condition, Rett syndrome. This week, researchers at Massachusetts General Hospital (MGH) in the US published an article documenting tests performed on mice models of…