Blog

Muscular dystrophy drug could offer new hope to families nationwide

Muscular dystrophy drug could offer new hope to families nationwide
Posted on 18 Jul 2016 by EnViva Paediatric

An eight-year-old boy living with muscular dystrophy could get access to a pioneering new treatment within a matter of weeks after a new deal was agreed by health bosses. The National Institute for Clinical Excellence (NICE) is expected to publish


“Locked in” boy defies medical opinions after finding a way to communicate

“Locked in” boy defies medical opinions after finding a way to communicate
Posted on 12 Jul 2016 by EnViva Paediatric

A young boy who was left unable to communicate with his family for the first seven years of his life has finally found a way to “speak” to his parents using a spelling board. Jonathan Bryan, aged ten, had been


Youngster writes to Queen about big brother’s cerebral palsy

Youngster writes to Queen about big brother’s cerebral palsy
Posted on 11 Jul 2016 by EnViva Paediatric

The younger brother of a little boy leading a campaign to help those with cerebral palsy recently wrote to the Queen to tell her about his older sibling’s fundraising efforts. Josh Baddeley, aged seven, penned a letter to Her Majesty


Boy with severe cerebral palsy achieves ‘breakthrough’ ability to read and write using his eyes

Boy with severe cerebral palsy achieves ‘breakthrough’ ability to read and write using his eyes
Posted on 5 Jul 2016 by EnViva Paediatric

A young boy with an ultra-rare form of cerebral palsy has achieved a “breakthrough” ability to read and write using only his eyes, thanks to innovative technology paired with his mother’s commitment and support. Jonathan Bryan, ten, has suffered from


Drug trials for muscular dystrophy sufferers to get underway

Drug trials for muscular dystrophy sufferers to get underway
Posted on 4 Jul 2016 by EnViva Paediatric

Young boys and men living with Duchenne Muscular Dystrophy could have access to a new treatment within the next five years, a leading expert has said. Speaking at the Oxfordshire Science Festival, Professor Kay Davies said that trials of a


Young girl with cerebral palsy to tackle triathlon with father

Young girl with cerebral palsy to tackle triathlon with father
Posted on 27 Jun 2016 by EnViva Paediatric

A young girl with cerebral palsy will tackle a triathlon alongside her father – using custom-made equipment developed by a think tank. Poppy Jones, ten, will take on the Cardiff triathlon using equipment designed by the Cerebra Innovation Centre –


Man tackles extreme endurance challenges alongside son with muscular dystrophy

Man tackles extreme endurance challenges alongside son with muscular dystrophy
Posted on 21 Jun 2016 by EnViva Paediatric

A UK man has embarked upon a number of daring endurance challenges with his young son, who has Duchenne muscular dystrophy. Mr Alex Smith took on the Ironman triathlon with son Harrison at his side, inspired by a father and


Fundraiser for young girl with Rett Syndrome raises thousands

Fundraiser for young girl with Rett Syndrome raises thousands
Posted on 20 Jun 2016 by EnViva Paediatric

A fundraising event hosted in aid of a two-year-old girl who suffers from Rett Syndrome has raised more than £2,000 for a charity dedicated to discovering new treatments for the rare neurological condition. Jessica Marries, Tillingham, was diagnosed with Rett


Young cerebral palsy suffer receives surprise donation from “Britain’s most notorious prisoner”

Young cerebral palsy suffer receives surprise donation from “Britain’s most notorious prisoner”
Posted on 14 Jun 2016 by EnViva Paediatric

A young boy with cerebral palsy has received a surprise donation from notorious prisoner Charles Bronson. Mr Bronson, 63, has spent almost 40 years behind bars and is often described as “Britain’s most notorious prisoner”. The inmate donated £510 to


Hampshire family’s remarkable fundraising push

Hampshire family’s remarkable fundraising push
Posted on 13 Jun 2016 by EnViva Paediatric

A family has raised an incredible £200,000 towards the Duchenne Research Breakthrough Fund in less than three years. Sue and Tom Barnley, from Hampshire, launched the Help4Harry campaign in August 2013, with the proceeds going towards more effective treatments for


Navigation