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New research insights hold potential for kids with DMD

New research insights hold potential for kids with DMD
Posted on 12 Feb 2019 by EnViva Paediatric

Experimental drug shows promise for simultaneously treating inflammation and heart disease in trial models. The drug in question called Vamorolone, does so by simultaneously targeting two nuclear receptors important in regulating inflammation and cardiomyopathy


Study urges teens with CP to decrease sedentary habits

Study urges teens with CP to decrease sedentary habits
Posted on 11 Feb 2019 by EnViva Paediatric

Teenagers with cerebral palsy (CP) do not meet the recommendations for healthy weight and physical activity, a study shows. They may also have a high percentage of body fat as well as being inactive.


Growing number of SEND children being home-schooled

Growing number of SEND children being home-schooled
Posted on 5 Feb 2019 by EnViva Paediatric

The Children’s Commissioner for England has warned that 60,000 children are permanently out of school, many of whom are vulnerable or have special educational needs.


Unilateral cerebral palsy hand-arm function improved by magic?

Unilateral cerebral palsy hand-arm function improved by magic?
Posted on 4 Feb 2019 by EnViva Paediatric

A spellbinding study has found that teaching children with unilateral cerebral palsy (CP) magic tricks can help to enhance their hand and arm functions – improving their ability to do everyday tasks.


Down’s syndrome charity hosts a ‘Moochathon’ fundraiser

Down’s syndrome charity hosts a ‘Moochathon’ fundraiser
Posted on 29 Jan 2019 by EnViva Paediatric

A Down’s syndrome charity is holding a ‘Moochathon’ on 23 March to raise awareness for ‘World Down’s Syndrome Day’ and to also help support people with the genetic disorder.


Changing neuron behaviour to combat seizures

Changing neuron behaviour to combat seizures
Posted on 28 Jan 2019 by EnViva Paediatric

Dravet syndrome is a severe form of epilepsy which can cause children as young as three months to have seizures in which their limbs will jerk repeatedly. Further on in life – when the children are toddlers – these can


Café hires young people with Down’s syndrome to help boost their CVs

Café hires young people with Down’s syndrome to help boost their CVs
Posted on 22 Jan 2019 by EnViva Paediatric

After a successful period in March 2018, a café staffed by young people with Down’s syndrome has recently opened.


Electrical stimulation could relieve dysphagia in children with cerebral palsy

Electrical stimulation could relieve dysphagia in children with cerebral palsy
Posted on 21 Jan 2019 by EnViva Paediatric

Research published in Acta Neurologica Belgica has found that electrical stimulation may assist children with cerebral palsy (CP) who suffer from difficulty swallowing.


Gene editing technique CRISPR may be the key to treating muscular dystrophy, finds new research

Gene editing technique CRISPR may be the key to treating muscular dystrophy, finds new research
Posted on 14 Jan 2019 by EnViva Paediatric

CRISPR is a gene editing technique that is inspired by the body’s natural ability to defend itself from viruses. It is primarily used to treat inherited diseases by replacing mutations in the genome to alter DNA sequences.


Hospital introduces Medibears to reassure children with learning difficulties

Hospital introduces Medibears to reassure children with learning difficulties
Posted on 8 Jan 2019 by EnViva Paediatric

Medical teddy bears have been specifically designed to help explain to young hospital patients, particularly those with learning difficulties, what happens during their treatment.


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