A young boy with Duchenne muscular dystrophy and his family have raised tens of thousands of pounds for Muscular Dystrophy UK, after launching their own fundraising campaign.
Parents Tom and Sue Barnley first set up the Help4Harry fund in August 2013, after their son Harry was diagnosed with the rare muscle-wasting disease in June of the same year.
Through a long series of events and fundraising initiatives, including skydives, bicycle rides and mountain treks, the Barnley family, Farnham, have managed to raise £200,000 for the research-focused UK charity.
“Tom and I are thrilled that this amount of money has been raised, it is just incredible. Our network of family and friends wishing and willing to carry out challenges is just phenomenal,” said mother, Sue Barnley.
“This money means that vital research can take place with the hope that one day soon there will be an end to this dreadful disease.
“The support we receive from all our family and friends just continues to leave us speechless.
“A massive thank you from Tom and I to everyone that has organised an event or sponsored somebody, it means the world to us,” she said.
Commenting on the Barnley family’s contribution to their cause, Anneke Liefting, of Muscular Dystrophy UK, said: “They have made a huge impact to the Duchenne Research Breakthrough Fund.
“As a charity we know that the fund would not be in the place it is today without the impact Help4Harry has made.”
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