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Could CRISPR help 70,000 Britons living with muscular dystrophy?

Could CRISPR help 70,000 Britons living with muscular dystrophy?
Posted on 24 Sep 2018 by EnViva Paediatric

Scientists experimenting with an influential new kind of gene-editing technology known as CRISPR are becoming increasingly interested in whether it could prove game-changing for conditions such as muscular dystrophy.


Tech program helps boy with cerebral palsy to walk

Tech program helps boy with cerebral palsy to walk
Posted on 18 Sep 2018 by EnViva Paediatric

A young boy living with cerebral palsy has begun walking thanks to an ‘assistive technologies’ computer program.


Youngster with cerebral palsy ‘walks to school for first time’

Youngster with cerebral palsy ‘walks to school for first time’
Posted on 17 Sep 2018 by EnViva Paediatric

A young girl who has lived with cerebral palsy since birth has walked to school for the first time following a life-changing operation.


Five-year-old pens book about living with cerebral palsy

Five-year-old pens book about living with cerebral palsy
Posted on 10 Sep 2018 by EnViva Paediatric

A youngster living with cerebral palsy has penned a book about her day-to-day life, with the goal of helping other children to better understand the condition.


Banning spinal muscular atrophy drug is the wrong choice

Banning spinal muscular atrophy drug is the wrong choice
Posted on 4 Sep 2018 by EnViva Paediatric

The NHS could be banning a vital drug that would be devastating for around a 1,000 people with a rare disease called spinal muscular atrophy (SMA).


Gene-editing breakthrough good news for muscular dystrophy research

Gene-editing breakthrough good news for muscular dystrophy research
Posted on 3 Sep 2018 by EnViva Paediatric

A breakthrough in the field of gene-editing could provide hope for hundreds of people living with muscular dystrophy, researchers have said.


Daily glucocorticoid use could increase risk of spinal fractures in boys with DMD, study finds

Daily glucocorticoid use could increase risk of spinal fractures in boys with DMD, study finds
Posted on 28 Aug 2018 by EnViva Paediatric

A two-year study reports that boys with Duchenne muscular dystrophy (DMD) that are on a long-term regime of glucocorticoids (GCs) are more likely to develop spinal fractures, have poorer growth and gain more body fat than those on intermittent use.


Two year old boy youngest ever diagnosis of ‘childhood Alzheimer’s’

Two year old boy youngest ever diagnosis of ‘childhood Alzheimer’s’
Posted on 21 Aug 2018 by EnViva Paediatric

A two-year-old boy is believed to be the youngest person in Britain ever to be diagnosed with a rare brain condition labelled the childhood version of Alzheimer’s.


Young hockey lover with cystic fibrosis calls on children to join charity tournament

Young hockey lover with cystic fibrosis calls on children to join charity tournament
Posted on 14 Aug 2018 by EnViva Paediatric

An 11-year-old girl living with cystic fibrosis is encouraging other children to take part in an upcoming hockey tournament in aid of a prominent charity.


Core training may improve posture and walking ability in children with cerebral palsy

Core training may improve posture and walking ability in children with cerebral palsy
Posted on 13 Aug 2018 by EnViva Paediatric

Research has found that adding core stability exercises to physical therapy improves posture and walking ability in children with hemiplegic cerebral palsy.


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